Registry

There is a prospective data registry for the patients with tracheal diseases in Tracheal Diseases Research Center in Iran since 25 years ago, currently with more than 2800 records.

Objectives of Registry

Incidence and prevalence rate estimation; Risk factors assessment of PITS; Screening of the patients with PITS; Long term follow-up program implementation; Patients education; None-relevant specialties, nurses and general physicians education; Improvement of surgical and non-surgical treatment; Improvement of ICU care for intubated patients, Diminishing and management of complications, Publishing articles, Attending in international and national conferences,

Registry guideline

In order to data registry of the patients with tracheal stenosis or ICU discharged patients in pursue of prevention of tracheal stenosis, and improvement of treatment means, the discharged ICU patients who have more than 24 hours of intubation are actively followed-up three months after extubation, if they have no warning symptoms. The patients are educated to return to the clinic as soon as they get symptoms for physical examination and if indicated rigid bronchoscopy.

All demographic information, history of intubation and the stenosis characteristics, resectional and non-resectional procedures, post operation complications are documented and registered in a designed questionnaire. The questionnaire is semi-structured and has already been validated. After that, all collected data are entered into a statistical software.  A licensed nurse has been trained for data entry and a general physician is in charge of data management. The trainee reviews the patients’ charts before the patients are discharged from the hospital.

All patients with tracheal stenosis after treatment by either resection or non- resectional procedures should be followed-up. The patients who underwent surgery return to the clinic after one month. They are visited for evaluation of anastomotic site and probable complications by rigid or fiber-optic bronchoscopy. All information are documented.  The patients who underwent non-resectional procedures and temporarily treatment are followed up based on surgeons’ professional opinion.

 

 


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